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ad anne fu diagnosticata la aku a dicembre 2009. “fui sconvolta ma, allo tempo stesso, sollevata perché ormai sapevo di cosa si trattava e potevo dargli un nome”, dice anne. “il problema più grande è sentirsi isolati e la gente che non capisce cosa sia l’alcaptonuria”.
anne was diagnosed with aku in december 2009. “i was shocked but glad to know what was wrong with me and have a name for it,” says anne. “the biggest problem is feeling isolated and people not understanding what alkaptonuria is.”